Sickle Cell Disease Genomics Network of Africa
SITE COORDINATOR - ABUJA
Obi is the is the Site Coordinator for the Abuja Site and a Professor
of Haematology and Blood Transfusion, Director, Centre for Sickle Cell Disease
Research and Training University of Abuja (CESRTA), Honorary Consultant
Haematologist, University of Abuja Teaching Hospital Gwagwalada, Abuja,
She is a founding member of Sickle CHARTA and Vice Chair of the Nigerian
Sickle Cell Support Society (SCSSN) which works with the government and
professional groups for the control of SCD in Nigeria. In that capacity, she is
responsible for most of the in-country activities of the Network. She serves on
technical committees of the government on non-communicable diseases and has
completed a number of national assignments related to SCD.
Obi is a member of the American Society of Hematology African
Newborn Screening and Early Intervention Consortium while also a Chevening
Scholar and alumnus of Imperial College London. She is Chair Advocacy of
Sickle Pan African Network (SPAN).
SITE COORDINATOR - KUMASI
Vivian is the Coordinator for the Kumasi site. She oversees the organization of all project activities in Kumasi. Also, she is the clinical lead and sees to the daily running of the project.
She completed KNUST with an MBChB and thereafter her fellowship training (FWACP), specialising in Paediatrics. She undertook a subspecialty training in Paediatric Haematology/Oncology in 2013 at the University of Cape Town; and has a certificate in Health Administration and Management.
Vivian is a Specialist Paediatrician, and has been taking care of children with SCD for the past 14 years. She has been involved in the Newborn Screening Project at KATH and ORDISS, and is currently on the Sickle Pan African Research Consortium (SPARCo) project. It is her dream to have a foundation to take care of SCD affected children.
Her hobbies are reading and watching movies.
SITE COORDINATOR - LAGOS
Titilope is the Site Coordinator for the Lagos Site and an Associate Professor in the Department of Haematology & Blood Transfusion, Faculty of Clinical Sciences, College of Medicine, University of Lagos and a Consultant Hematologist to the Lagos University Teaching Hospital, Nigeria. She earned her medical degree at the College of Medicine, University of Lagos, and completed her residency training in hematology at the Lagos University Teaching Hospital.
She obtained a Master’s degree in Hemoglobinopathies at the University College London with a distinction. Her research interests are in sickle cell disease (SCD), blood transfusion science and inherited bleeding and clotting disorders.
She is interested in the characterization of SCD based on genetic variations and impact on disease severity.
SITE COORDINATOR - KANO
Najibah Aliu Galadanci
Najibah is an investigator and the site coordinator for the Kano, Nigeria site on the SickleGenAfrica: Sickle Cell Disease Genomics Network of Africa, where she oversees research activities, ensure protocol adherence, provide guidance for general clinic management of the study participants and also serve as a member of the steering and executive committee.
She has been working in the department of hematology in Bayero University and Aminu Kano Teaching Hospital, northern Nigeria for over twelve years. Initially, as a resident doctor, she went on to become a lecturer and consultant hematologist. She is a practicing clinician and a laboratory physician in Kano, northern Nigeria. As a hematologist with a special interest in sickle cell disease, her research experience has been focused mainly on this area. She received the prestigious David Satcher Award, for a full tuition scholarship for a Masters in Public Health at Vanderbilt University (2013), and an NIH Forgarty fellowship award in June 2014. She concluded both the MPH program and the NIH Forgarty fellowship in May 2015.
She was the site investigator of the first NIH funded Primary Prevention of Stroke in Children with Sickle Cell Disease in Nigeria trial referred to as the SPIN trial (1R21NS080639-01). The Stroke Prevention in Nigeria (SPIN) Trial (Grant 1R21NS080639) seeks to examine the role of Hydroxyurea (HU) for primary prevention of strokes in children with SCD in Nigeria. More recently, Najibah became the multi-PI for the NIH funded phase III trial of hydroxyurea for primary stroke prevention in children with SCD in Sub-Saharan Africa referred to as the SPRING trial ((R01NS094041) and the multi-PI for the Thrasher funded phase III trial of hydroxyurea for secondary stroke prevention in children with SCD in Sub-Saharan Africa referred to as the SPRINT trial. Both the SPRING and SPRINT trials are multicenter randomized controlled trials aimed to determine whether moderate dose HU therapy can potentially prevent thousands of strokes (primary and secondary prevention respectively) in children at high risk in Africa, while simultaneously training the next cadre of physician scientists in Nigeria.
SITE COORDINATOR - ACCRA
Edeghonghon is the site coordinator for Accra. He is a graduate of the College of Medicine, University of Ibadan, Nigeria and a Consultant Haematologist. He is the immediate past Director of the Ghana Institute of Clinical Genetics (GICG), where the premier adult sickle cell disease clinic in Ghana is located.
His areas of expertise include sickle cell disease, thrombosis and haemostasis. He is a Fellow of the Higher Education Academy, U.K.
He coordinates all the activities at the Accra site and also represents the site at the site coordinators’ meeting.
He spends his leisure reading biographies and watching documentaries.
Administration & Examination Hall Building.
School of Biomedical and Allied Health Sciences.
University of Ghana,
Korle Bu, Accra, Ghana
+233 303 970949
SickleGenAfrica is funded by NIH Common Fund Award / NHLBI Grant Number U54HL141011
The SickleGenAfrica website content is solely the responsiblity of the authors and does not necessarily represent the official views of the National Institutes of Health.
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